Parkinson's Disease Caregivers Support Corner

 

Generally, the caregivers support group is for you to discuss issues related to your role as a caregiver, an opportunity to share experiences and emotions with a sympathetic audience, and a means to find resources to help ease the burden of your responsibilities.

 

Parkinson's Disease and Emotional Needs:

Receiving a diagnosis of Parkinson’s disease (PD) can be a major emotional blow. In addition to feelings of anger, frustration, loss, and sadness, someone diagnosed with Parkinson’s disease may also feel guilty for the way their diagnosis affects their loved ones as well. Dealing with these issues head-on can make a substantial difference in the quality of your lives.

 

Some things to keep in mind:

• Maintain open lines of communication with your loved one

• Watch for signs of serious depression

• Find a support group to help deal with emotional stress 

 

 

Parkinson's Disease and Physical Needs

Because Parkinson’s disease (PD) is a progressive condition that affects movement and motor control, some changes in the living environment and activity modifications can help ensure that your loved one stays active and engaged in life as much as possible. Learn more about:

• Making the home more comfortable 

• Managing activities of daily living 

• Helping your loved one remain active and engaged 

 

Parkinson's Disease and Social Needs

Caregivers often notice signs of social withdrawal or listlessness in their loved ones with Parkinson’s disease (PD). It’s important to take these signs seriously as they may indicate increased symptom activity, side effects of treatment, or the development of clinical depression, which may appear in up to half of people with Parkinson’s disease. Remember, depression is treatable, and symptoms can often be controlled with treatment plan adjustments.

 

However, disengaging from social situations may also be a result of the fatigue often experienced by people with Parkinson’s disease or a feeling that they are a burden to those around them. To overcome these obstacles, a little encouragement may go a long way. And once your loved one re-engages socially, it may become easier.

 

You might also want to consider social activities that are less challenging and make your loved one feel more comfortable, such as having friends over for a meal or backyard barbecue or to play cards or board games.